Goldenhar Syndrome Struggle

Goldenhar syndrome For years she hid her face She is young, successful lawyer and happy. Nevertheless Ivanka did not want to show her face all her life. I feel close to this story for I too have Goldenhar Syndrome. It is my left side of face and body that is affected. I keep my hair down cause of my reconstructed ear, and I mostly show my right side to people. So if i can say anything to Ivanka it would be, “we are golden, and yes we hide sometimes, but we are stronger people cause of our struggles. I am tempted to put my hair up in a ponytail like any other woman, but when i do i get stares. So it is hard, but there are alot of people with medical issues and we all have huge hearts because of that……..Last part written by Karen Moore of Health Knowing.

via Goldenhar syndrome
For years she hid her face — We are up to date

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